The Fshd Global Research Foundation Is A Non Profit Organization Focused On Improving The Lives Of Individuals Affected By Facioscapulohumeral Muscular Dystrophyfshd A Genetic Muscle Wasting Diseasefounded In 2007 By Bill Moss Aothe Foundation Has Raised Over $10 Million Through Donations To Support Medical Research Grantsoperating Without Government Funding The Foundation S Mission Is To Slow The Progression Of Fshd And Enhance The Quality Of Life For Those Affectedit Funds Medical Research Globallysupports Biotechnology Companies Developing Novel Treatmentsand Advocates For Systemic Changes In Healthcare To Facilitate Therapeutic Developmentadditionallythe Foundation Provides Educational Resources Through Its Medical Education Portal And Engages In Patient Advocacy To Ensure Access To Diagnostic Tools And Future Treatments
