The National Organization For Rare Disordersnordis A Nonprofit Health Agency Dedicated To Supporting Individuals And Families Affected By Rare Diseasesfounded In 1983Nord Has Become A Leading Advocate For The Rare Disease Communityplaying A Significant Role In The Passage Of The Orphan Drug Actwhich Encourages The Development Of Treatments For Rare Conditions Nord Provides A Variety Of Servicesincluding An Information Clearinghouse That Offers Resources For Patientsfamiliesand Healthcare Professionalsthe Organization Administers Medical Assistance Programs To Help Patients Access Care And Treatmentsadditionallynord Supports Research Through Grants And Natural History Studieswhich Are Vital For Understanding Rare Diseasesit Also Fosters Community Engagement Through Its Online Presenceconnecting Over 30 Million Americans Living With Rare Diseases And Supporting More Than 330 Member Organizationsnord S Efforts Have Contributed To The Approval Of Numerous Orphan Products And Therapiesenhancing The Lives Of Those Affected By Rare Conditions
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| Company Name | National Organization For Rare Disorders |
| Country |
United States
|
| Address | Ct Office 1900 Crown Colony Drive Suite 310 Quincy Ma 02169 |
| Telephone | Login to View |
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