Parent Project Muscular Dystrophyppmdis A Nonprofit Organization Focused On Combating Duchenne Muscular Dystrophya Serious Genetic Disorder Primarily Affecting Boysestablished In 1994Ppmd Aims To Accelerate Researchadvocate For Policy Changesand Ensure Access To Approved Therapies For Those Impacted By Duchenne Ppmd Provides Various Services To Support Individuals And Families Affected By Duchennethe Duchenne Registry Connects Patients With Clinical Trials And Research Opportunitiesthe Organization Also Offers Decode Duchennewhich Includes Free Genetic Testing And Counselingppmd Actively Raises Awareness And Advocates For Improved Care Standards While Educating Families And Healthcare Providersadditionallyit Fosters A Supportive Communitylinking Families With Healthcare Experts And Researchers Ppmd Has Made Significant Contributions To Duchenne Researchsecuring Substantial Funding And Facilitating Fda Approvals For Multiple Treatmentsthe Organization Hosts Annual Conferences To Engage The Community And Discuss Advancements In Care And Researchthrough These Effortsppmd Plays A Vital Role In Enhancing The Lives Of Those Affected By Duchenne Muscular Dystrophy
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| Company Name | Parent Project Muscular Dystrophy |
| Country |
United States
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| Address | N/A |
| Telephone | N/A |
| N/A |
