Parent Project Aps Is An Association Dedicated To Supporting Families Affected By Duchenne And Becker Muscular Dystrophyestablished In 1996The Organization Focuses On Improving Treatmentquality Of Lifeand Long Term Outcomes For Individuals With These Conditions Through Researcheducationtrainingand Outreach The Organization Manages The Italian Dmd Bmd Patient Registrywhich Plays A Vital Role In Data Collection And Research Supportparent Project Aps Also Organizes Conferencessuch As The International Conference On Duchenne And Becker Muscular Dystrophyto Promote Knowledge Sharing And Collaboration Among Stakeholdersthey Work Closely With A Network Of Around 20 000 Individualsincluding Familiescliniciansand Researchersand Collaborate With Partners Like Bluecompanion To Enhance Digital Health Platforms And Clinical Trials
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| Company Name | Parent Project Onlus |
| Country |
Italy
|
| Address | N/A |
| Telephone | N/A |
| N/A |
